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Under the motto "Caring is Sharing - Exploiting Value in Data for Health and Innovation", experts from all over Europe met from 22 to 25 May to discuss the latest developments in data sharing in the health sector. In the following, Matthias Löbe, who represented NFDI4Health at the event, reports on his contribution.
News
On 11 May, our second workshop for the development of the NFDI4Health Central Access Point (CAP) took place. Our goal is to develop a tool for a simplified, unified and digital application management for research data.
On 07 June 2023, all members of the U Bremen Research Alliance will jointly organise "Research Data Management Days". The aim is to raise awareness of the importance of contemporary research data management and share good practices throughout the Alliance and by involving stakeholders from business and society.
The National Research Data Infrastructure for Personal Health Data (NFDI4Health) is setting up four projects in the field of citizen science. The goal is to reduce concerns about the use of data through intensive exchange with interested citizens and to demonstrate the opportunities it offers.
We will be at the 60th Scientific Congress of the German Society of Nutrition in Bonn from 15 to 17 March. Feel free to come to our booth and/or listen to a presentation on NFDI4Health + live demo on Friday from 09 to 10 am in lecture hall 5/6 at Campus Poppelsdorf. We look forward to questions and a good exchange!
The role of data infrastructures for health research is not limited to acting as a service or interface for data exchange between data producers and data users. Rather, the infrastructure itself is an actor in the process of data sharing and therefore also bears responsibility for this process.
The Canadian Mælstrom Research group [1] has built one of the largest catalogue of epidemiological studies in the world, and develops methods, classifications and software to make epidemiological studies discoverable, comparable and prepares them for joint data analyses. Mælstrom Research works also with many European partners in epidemiological research consortia. The meeting was conducted to establish a strong cooperation between the Mælstrom Research group and NFDI4Health, to foster study data sharing internationally along with an international standing and visibility.
