Events

In this session, the audience is introduced to the collection of data on diagnosis, treatment, and disease course from cancer registries across Germany:

The nationwide network of cancer registries of the German federal states is responsible for the continuous collection of information on diagnosis, treatment, and disease course. The registries submit data to the Center for Cancer Registry Data (ZfKD) of the Robert Koch Institute (RKI) once a year, in accordance with the Federal Cancer Registry Data Act (BKRG). The ZfKD compiles the data into a nationwide dataset and makes it available for scientific research projects upon application. 
Currently, data can be requested from two different datasets: the epidemiological dataset (earliest available year of diagnosis: 1999), and the clinical dataset (from diagnosis year 2020). The epidemiological dataset contains basic demographic information as well as information on the primary diagnosis and vital status. The clinical dataset additionally includes more detailed data on diagnosis as well as information on cancer treatment and disease progression.
Data can be requested as individual case data or in aggregated form using the appropriate application forms on the ZfKD website. Applicants must justify the scope of the requested data and provide information on the intended data processing environment. Each application is reviewed by the ZfKD together with its scientific advisory committee.

Date: 03 September 2025 | 16:00 to 16:45
Location: Online (Zoom)

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Die Teilnahme ist kostenlos: Jetzt registrieren 
Weitere Informationen: Meet-the-Data @Gesundheitsforschung
Veranstalter: NFDI4Health & BIH QUEST Center @Charité