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The conference of the Network for Evidence-Based Medicine (EbM) took place from 26th to 28th March 2025 at the University of Freiburg. The focus of the conference was on the challenges and opportunities of evidence-based healthcare. The programme included keynotes, symposia, workshops, as well as lecture and poster sessions on topics such as Open Science and FAIR data sharing.
Julia Fürst and Kathrin Grummich were on site for NFDI4Health with the workshop "Research Data Management and FAIR Data Sharing of Study Data". The workshop addressed fundamental principles and methods of research data management, including the FAIR principles in the research data lifecycle, data organisation methods, and the role of metadata. A key focus was on "data sharing" practices in health research. Researchers were provided with knowledge and tools to share and publish their own research data – while considering data protection and ethical principles. In the practical section of the workshop, the search function for study metadata in the Health Study Hub was demonstrated.
NFDI4Health was already highlighted on the opening day of the congress. Daniel Strech from the Berlin Institute of Health (BIH)@Charité highlighted NFDI4Health in his keynote, "Evidence-Based Medicine in the Age of Open Science: What is Really Changing?". The Health Study Hub was presented as a positive development in the field of effective data sharing – although it is considered a core principle of Open Science, it has so far been hardly realised in Germany and EbM. The German Research Data Portal Health (FDPG) of the Medical Informatics Initiative, which NFDI4Health is currently expanding for clinical, epidemiological, and public health studies, was also mentioned as a best practice example.
