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Dr. Jens Dierkes, responsible for Community & Networking at NFDI4Health, draws positive feedback: "We were represented with various contributions: At the Community Workshop on the visions and infrastructure projects of NFDI4Health - from FAIR Data to the central search platform, the German Central Study Hub, During the World Café, we gathered feedback from the DGEpi community on various core topics of NFDI4Health. Critical issues discussed included how we can make studies easier to find in the future; how to share personal data more efficiently; and how we can train people to handle FAIR data. We can now use the valuable feedback from the community to further develop the various services in a more tailored way. In addition, the NFDI4Health booth was used for the first time, where we were able to get in touch with the DGEpi community in an uncomplicated and direct way. At the same time, we held a hands-on training session on the Study Hub as part of the Research Data Day at the University of Greifswald, where we also engaged in a fruitful exchange with interested users.
The workshop "How to access and use secondary data - a workshop especially for early career scientists" focused on the topic: "Which data can I use for my bachelor, master or PhD thesis?" - This is a question most early career epidemiologists ask themselves, other students, or their supervisors at some point in their studies.
In our workshop, we aimed to introduce the field of secondary data use specifically for junior scientists. The first presentation was an overview of available secondary data in Germany, followed by more specific presentations on cohort studies such as the National Cohort (NAKO) and the Study of Health in Pomerania (SHIP), or the German Center for Cancer Registry Data.
The focus was on data access and use, especially for students. Therefore, each presentation addressed issues related to data quality management, contact with the research team and the possibility to ask questions (e.g., about formal aspects or content and structure of the data), duration of requesting datasets, possible costs, and derivation of the research question.
In the "Community Workshop: FAIRification of epidemiologic research study data" would focus on four key topics:
1. Information on the goals, scope, and ongoing work of NFDI4Health.
2. Presentation and discussion of approaches to FAIRification of epidemiological data
3. Reviewing challenges and solutions for sharing data across studies
4. Highlighting education and training opportunities in the field of research data management.
In addition, there was a so-called World Café. Here, the community had the opportunity to interact directly with members of NFDI4Health. The focus was also on discussing the specific perspectives, experiences, and needs as data users and/or data providers in order to incorporate this valuable information into the further development of NFDI4Health services.
A complete listing of NFDI4Health activities at the DGEpi Annual Meeting can be found here.
